The CARE Principles are a framework for the governance of data collected in indigenous communities worldwide. These principles – Collective Benefit, Authority to Control, Responsibility, and Ethics – serve as high-level guidelines that can be adapted and implemented to respect the unique contexts and needs of particular indigenous communities. At the same time, these principles feed also into broader conversations about the governance and sharing of data collected in wide-ranging fieldwork contexts.
The workshop is designed to be both informative and interactive. In the first part, participants will explore how the CARE principles relate to participatory research, gain insight into how the Ethics Review process addresses CARE elements, and learn about the legal frameworks Dutch research institutions use for data governance and sharing.
The second part invites participants to actively engage in working groups guided by experienced researchers from the International Institute of Social Studies. Together, they will dive into three key CARE dimensions—Collective Benefit, Authority to Control, and Responsibility—through discussion and hands-on exploration.
The session will conclude with an invitation to storytelling, where participants can share their own fieldwork experiences and learn from each other.
The session is highly interactive and encourages participants to suggest viable pathways to address these elements in their own research contexts. As such, while mainly focused on the Dutch Higher Education sector, this training format is likely to benefit users in other EEA countries or further abroad.
Program outline
| Part I: Lightning Talks |
| 13.00 |
Introduction: The CARE Principles in Light of Participatory and Engaged Research |
| 13.20 |
The Inherent Uncertainty of Fieldwork data and the Ethics Review Process |
| 13.40 |
Frameworks for Research Data Governance |
| 14.00 |
Q&A |
| 14.10 |
Break and refreshments |
Part II: Parallel Group Sessions |
14.30
15.15 (Optional Break)
15.30 |
- Group 1: Integrate the concept of Collective Benefit into the ethics process while maintaining accountability to communities and research organisations
- Group 2: Generate scenarios for how Authority to Control can interact with data journeys in Dutch institutions
- Group 3: Model dimensions of Responsibility as different choices researchers can make to give back and for research impact, balancing community acknowledgement, community needs, as well as community evaluation of research findings (e.g., community peer review)
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| 16:00 |
Storytelling: My story: what I learned in the field that school didn’t teach me |
|
| 16.50 |
Wrap up and Evaluation |
Organisers
- Bora Lushaj, Jing-Yi Magraw, and Tijs Gelens, International Institute of Social Studies, Erasmus University
- Deborah Thorpe and Michelle van den Berk, DANS
Registration
Attendance at this workshop is free, though registration is required. Places are limited to 30 people so please register as early as possible. To register, please fill out the short registration form below. Once you have registered we will be in touch again with practical information in advance of the workshop.
If, having registered for the event, you cannot attend, please let us know as soon as possible so that we can reallocate your place.
Your data is only processed by the workshop organisers in the context of this project. More information can be found in the DANS Privacy Statement.
